I have a little guy that is 7 years old with insulinoma. He has periods
from 1 hour to 5 or 6 hours when he is limp and lifeless. We put Karo
under his lips and after several hours he will come out of it. I have
tried predsone but he has a reaction. My wife and I give him a teaspoon
of water with a little Karo about every 5 to 6 hours. This helps to
increase the time between seizures and sometimes he may go 2 or 3 days.
He is not eating much and nothing seems to apeal to him. When he is up
he will walk but loose his balance. I don't want to see him suffer. I'm
not sure what to do next. I would appreciate hearing from those that
have experienced this disease.

Thanks,
Mike

[Posted in FML 5582]